Our Story
My daughters both grew up as avid dancers - physically fit and active. Blessed with good health, the majority of their doctor's appointments consisted of well visits and an occasional sick visit. However, in October 2012 my daughter went to bed healthy and woke up with an extremely distended abdomen. This began our endless journey of doctor visits, tests and hospital stays that continues to this day. As we searched for a diagnosis, her life revolved around daily struggles and constant medical challenges that quickly became overwhelming. The barrage of paperwork from doctor's summaries, appointment notes, test results, medications, and insurance information was overwhelming to track. Staying organized was a constant challenge and I realized there had to be an easier way to manage so much information. Through trial and error I began to develop different ways to file all of the different pieces to our ongoing medical journey. It was important to me to go into each appointment with a clear mind, knowing that we had all of the information that was needed readily accessible. At a time when so much has been out of our control, being organized empowers both of us to have an understanding of her care and a voice to be more confidently active in the direction of her care.
Our journey began many years ago when my daughter came down with an unexplained illness. This started our path down a difficult medical environment to help save my daughter's life. After years of being undiagnosed, misdiagnosed, and passed from one specialist to another, I needed to find an organizational system that would help me, as well as her specialists, navigate her care.
With each doctor's appointment leading to another, it was nearly impossible to keep track of all the information, tests, labs, and trials of medication. With this Organizational Agenda, caregivers and doctors can visually see where this health journey has taken us. This agenda is invaluable and serves as my voice when I am too exhausted, forgetful, or emotional to speak. The doctors refer back to this organizer time and time again to discuss test results, to view lab results, and to see notes from other specialists with different hospital affiliations. While hospitalized, it is coveted by her doctors and nurses, as it provides knowledge and prevents unnecessary tests and repeated procedures. It provides communication for all her doctors, all in one place.
Recently, during the COVID pandemic, this organizer was my lifeline. Since visitors during this time were not allowed in the hospital, this organizer did the talking. This held her medical history and allowed the hospital staff to have the knowledge about what doctors to contact, what medication needed to be administered and when, and what should not be given.
Whether you are fighting an illness or just want to keep your most important asset organized, this is the place to do it.